AAFP: An Introduction to Personal Health Records

The American Academy of Family Physicians is one of the largest national medical organizations, representing more than 94,600 family physicians, family medicine residents and medical students nationwide. This site provides an overview what you need to know about this growing trend to give patients access to a portable health record.

AHA: Personal Health Record Resource Center
The American Heart Association (AHA) mission is to build healthier lives, free of cardiovascular diseases and stroke. Overview of what is a PHR and why are they important.

CCHIT: PHR Decisions
Personal Health Records (PHR) information and news for consumers from CCHIT.

CHCF: Perspectives on the Future of Personal Health Records
The California HealthCare Foundation is an independent philanthropy committed to improving the way health care is delivered and financed in California. CHCF commissions research and analysis; publishes and disseminates information; convenes meetings of key health care groups; and funds development of programs and models aimed at improving health care in California.

Chilmark Research
Chilmark Research is a healthcare technology industry analyst firm focusing on personal healthcare technology that will enable citizens to take more direct responsibility for their health and the health of loved ones.

CITL: The Value of Personal Health Records
Center for Information Technology Leadership (CITL) was chartered in 2002 by Boston-based, nonprofit Partners HealthCare System as a research organization established to help guide the healthcare community in making more informed strategic IT investment decisions. The Value of Personal Health Records report examines the value proposition for implementing personal health records (PHRs) throughout the US.

Connecting for Health from the Markle Foundation
Connecting for Health is a public-private collaborative with representatives from more than 100 organizations across the spectrum of health care stakeholders. Its purpose is to catalyze the widespread changes necessary to realize the full benefits of health information technology (HIT), while protecting patient privacy and the security of personal health information. Connecting for Health has convened two new national panels to recommend policies for networking PHRs with institutional health data sources.

 

e-Patient Dave: The Voice of Patient Engagement.

An accomplished speaker and writer in his professional life before his illness, today Dave is actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. This is revolutionizing the relationship between patient and health care providers, which in turn will impact insurance, careers/jobs, quality of life and the distribution of finances across the entire spectrum of health care.

e-patients.net
e-patients to describe individuals who are equipped, enabled, empowered and engaged in their health and health care decisions. Stories and challenges patients have in dealing with the healthcare system.

Medicare PHR Choice
Medicare’s program to offer Personal Health Records (PHRs) to people living in Arizona and Utah who have Original Medicare - this program is called Medicare PHR Choice. In this program, participants are able to have their health information safely stored in one place and available anywhere they can access the Internet.

Medline Plus: Personal Medical Records
MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations.

MyPHR by AHIMA
How to start a PHR, privacy information and tools and resources from the American Health Information Management Association (AHIMA). Personal health information is a valuable resource to individuals, their families, and the doctors, nurses, and other healthcare professionals who provide treatment and care. Website shares stories and provides information via a blog.

Project HealthDesign from the Robert Wood Johnson Foundation
Project HealthDesign was created to explore the power and potential of next-generation PHRs—to demonstrate that their usefulness lay not so much in providing people with the ability to view information gathered from clinical episodes but in enabling a host of innovative PHR applications to be built that helped people make sense of their daily health and take informed actions.